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Down Syndrome - Assistance and Caregiving

 

Her teeth are delayed coming in and are a little more sensitive that others and therefore she must be fed softer foods. I provide care for all of her ADLs which include feeding her, getting her dressed every day, bathing, changing her diaper as well as helping her walk. Whether I am at work or home my boyfriend is great with helping Isabella with IADLs. This would include preparing her meals, picking up after her, taking her to the park or appointments she may have as well as doing grocery shopping.
             I am not eligible for any type of support as a caregiver which is why I stay home the majority of the time taking care of her. I am in the Reserves which provide us with healthcare and money but due to the fact that I do not bring in enough with just that I have a part time job which I work mostly every weekend. When I am working I need someone to watch Isabella and that is when my boyfriend steps in and helps out. We coordinate our schedule so that one of us is able to watch her as we are hesitant about others watching her at this point in time and the finances are not there to hire someone.
             The Impact of Caregiving on the Caregiver.
             The first empirical study I examined looked at those adolescent children were perceived to have a higher quality relationship with their disabled sibling, especially those with Down syndrome (Pollard, 2013). Ever since I was granted custody of baby sister I feel a greater sense of responsibility and closeness with my sister especially because I know things are hard without her having our parents here. The study showed that those who have siblings with Down syndrome have a better overall sibling relationship than those with siblings without disabilities. However, higher levels of stress were also reported (Pollard, 2013). As rewarding as it is to care for my younger sister at times it is very stressful and frustrating. It is especially hard to deal with on certain days because I think about how I did not chose this for my life but I have to remember Isabella did not chose this for her life either.


Essays Related to Down Syndrome - Assistance and Caregiving

1. Down Syndrome

One of the most common disabilities associated with developmental delay is Down syndrome. ... Although Down syndrome has been alluded to through time, it was first accurately described by English physician, John Langdon Down in the late 19th century, and identified as a chromosomal anomaly by French physician, Jerome Lejeune, in 1959 (National Down Syndrome Society (NDSS), 1995-2003). An extra chromosome 21 characterizes Down syndrome. ... Many children may need assistance as they learn to use speech and language and some will use total communication until they can be transitioned into using j...

  • Word Count: 1740
  • Approx Pages: 7
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2. Down Syndrome

Not every child with Down syndrome has all the characteristics; some may only have a few, an others may show most of the signs of Down syndrome. Over a 120 features have been described in Down syndrome. ... Down Syndrome in Live Births by Single Year Maternal Age. ... Parents who have a child with Down syndrome have an increased risk of having another child with Down syndrome in future pregnancies. ... Children with translocation Down syndrome do not differ from children with trisomy 21 Down syndrome in the degree to which they are affected. ...

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3. Down Syndrome

In 1960, the name was changed to Down's Syndrome and 10 years later in the 70's American Scientist's changed the name to Down Syndrome. One in every 800 to 1,000 children is born with Down Syndrome. ... Low levels signal an increased risk for Down Syndrome. ... Another type of Down Syndrome is Mosaicism. ... Incidence of Down Syndrome and Maternal age Down Syndrome affects people of all races, social and economic levels. ...

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4. Facing the Disability of Down Syndrome

Those with Down syndrome mostly all have the same physical features. ... Down syndrome was first discovered by John Langdon Down who was physician in the 1856. ... Down started studying the syndrome, he and his wife started growing a compassion for those with Down syndrome. ... Down had such a compassion with Down syndrome, many were not as sympathetic over it. ... As stated, "An increasing number of adults with Down syndrome in the U.S. are living independently with limited assistance from family members or the state. ...

  • Word Count: 1839
  • Approx Pages: 7
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5. Down's Syndrome

Down's Syndrome Each year, there are about three thousand to five thousand people who are diagnosed with Down's Syndrome. in the United States alone. The way in which Down's Syndrome occurs is when there is an abnormality in chromosome 21. Therefore, most people with Down's Syndrome have an extra 21 chromosome. ... People with Down's Syndrome have physical abnormalities and phsychological ones. ... In addition, there is alot of differenves with children who have Down syndrome. ...

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6. Down Syndrome

DOWN SYNDROME Down Syndrome is a very serious disease. ... Down Syndrome was first discovered by a physician named John Langdon Down in 1866. ... John Langdon Down referred to the children with Down Syndrome "Mongoloids." ... People with Down Syndrome could mate a have children. ... If a person with Down Syndrome would mate, Down Syndrome could be passed to the offspring. ...

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7. Down Syndrome

Down Syndrome What is Down syndrome? Everyone has heard of Down syndrome but does anyone really know what it is and the causes of Down syndrome. ... Trisomy 21 is the most common type of Down syndrome. 95% of people with Down syndrome have Trisomy 21. ... This occurs in about 3 to 4% of people with Down syndrome. ... Even though the cause of Down syndrome is not known, we know plenty to help us with dealing and helping people with Down syndrome. ...

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8. Down Syndrome

(Down Syndrome "The Psychology of Mongolism" pg. 4) Types of Down Syndrome Trisomy 21 is the most common form of Down Syndrome representing about 95 percent of all the cases. ... Translocation only occurs in about 4 percent of Down Syndrome Cases. ... (Motor Development of Down Syndrome Children pg.2) Not only do infants with Down Syndrome acquire motor skills at a slower rate, but there is a difference in the rate of development between infants with Down Syndrome who are institutionalized and those raised at home. (Motor Development of Down Syndrome Children pg. 3). ... (Motor Develo...

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9. Down syndrome

DOWN SYNDROME Down syndrome is a chromosomal anomaly which usually causes delays in physical and intellectual development. Children with Down syndrome are not defective, they are just different. ... The exact cause and prevention of Down syndrome is unknown. ... There are three major types of Down syndrome. ... Children with Down syndrome are no different. ...

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